Adding It Up: My Journey To An Adult ADHD Diagnosis

I was diagnosed with ADHD in October of 2020. It was, as diagnoses go, not very interesting because the whole lead-up was such a common story. But I was thinking about that and realized that that was probably a good reason to tell it. Some adults with ADHD have a pretty easy time figuring everything out, and this is fantastic. But for many others, diagnosis goes one of two ways. Either we will realize something is not working right, and ask questions, and people will tell us that ADHD is only a thing for hyperactive boys so there’s no way we have it and we just need to try harder, or we will just assume we are a mess and that’s our inherently flawed personality, until someday a boulder of enlightenment hits us on the head and we go seeking answers. . Even for those who have an easy time, the fact that they’re getting diagnosed in adulthood means that it was missed when they were young, and they’ve been going through life with a ton of challenges they didn’t have to have. No matter how the process goes, those of us not diagnosed in childhood are dealing with adult ADHD and the process of diagnosing it, and this is often a minefield of questions, judgment, and self doubt. (

The Diagnosis Came Late, But The Patterns Started Early

If anyone suspected ADHD when I was a kid, no one said anything about it to me. I wasn’t hyperactive, I liked school, and I actually did pretty well. I was really talkative but very well-behaved. I, like many women, didn’t show the signs stereotypically associated with ADHD, especially as a girl in the 90s. I mostly struggled with organization and motivation. I sometimes did my homework, but often didn’t. If I did an assignment I’d forget to turn it in., or bring it to school and lose it, only to discover it in my backpack three weeks later. This was a consistent thread all through school. . Life became a vicious cycle of not doing homework, or doing it and then losing/forgetting it, then having my teachers tell my parents about the massive amounts of missing work I had, then them coming home and yelling at me to catch up on my assignments, then me cramming months worth of work into just a few weeks, spending a lot of time crying and feeling really overwhelmed, and then finally catching up and promising that I would never let it happen again. But I did.

College was better. The volume of busywork got smaller and the classes got more interesting, which makes a huge difference for someone with ADHD. . I was still struggling though. To cope, I learned how to bullshit my way through discussions, and how to look really engaged during lectures while I was actually instant-messaging friends. I couldn’t stay focused in classes, but everyone else seemed to be able to manage it, so even though I was a dedicated student who loved my classes and my teachers, I assumed I was just a slacker and vowed to try harder. Do you see the pattern yet?

Grad school was a different chapter of the same book. Others could seemingly keep up with the massive workload, juggle five projects, and sit through three-hour lectures without issue. They weren’t completely taken out of commission when things got overwhelming. If they needed to work they complained, but then they just sat down and did it without having an existential crisis. I couldn’t do that. And it got worse once I got out of classes and started writing my dissertation. Suddenly my external structure was gone, and I completely fell apart. I would try to talk myself into working for days, and wouldn’t be able to sit down to get started. I so desperately wanted to, and couldn’t understand why the wanting didn’t make it any easier. Weeks would go by and nothing would get done, and I would be bingeing Netflix and hating myself. This giant project with a thousand tasks and few external deadlines and huge power over my life settled in, and it started slowly crushing me.

Rock Bottom: The Place To Finally Start Playing ‘Connect The Dots’

What I know now as ADHD paralysis started impacting the rest of my life. I had always been horrible at keeping up with chores, but I got worse. I ordered takeout most nights because even trying to figure out what to make for dinner and how to make it would leave me overwhelmed and stuck for hours until I gave up. My problems with executive functioning had always been there, but they hadn’t ever been this bad. I didn’t feel like a lazy person, but results indicated otherwise, even for things I wanted to do, so that had to be it. . But every time I tried harder, things fell apart more. Eventually the dissonance got so bad that I had to start entertaining the idea that I wasn’t just a horrible person with a list of moral failings, but maybe something else was going on.

And then the pandemic hit, and everything went to hell in a thousand ways. While the world was turning into a giant dumpster fire, so was my ability to exist as a functioning adult. My coping strategies totally collapsed, and for the first time, I was forced to acknowledge that something was really wrong, and I needed help. I kept telling myself it was anxiety, or something else, because I didn’t feel I’d ‘earned’ an ADHD diagnosis. I would be letting myself off too easy if I entertained the idea that this was a neurodevelopment issue instead of me just being a terrible lazy person.

The Penny Didn’t Drop, Someone Had To Throw It At Me

Peer support was what finally pushed me to reach out. My roommate started doing research for me, and was convinced of my diagnosis long before I was. And once I started to entertain the idea, I had many friends with ADHD who talked to me and helped me process, and validated this new part of my identity.

I have a lot of thoughts on the way we diagnose ADHD, especially in adults, so I’ll save the full breakdown of my experience for another post. But the short version is that I actually had a fairly easy time getting diagnosed and getting medication. I resisted it for a while, because again it seemed like I’d be giving myself a pass. But I finally gave in on a busy day when I was exhausted and knew I had a lot to do. And it was… incredible. ADHD medication doesn’t fix you. It is a tool. But when those pills kicked in that first day, I felt like I was flying, and it wasn’t because I was high. For the first time in I couldn’t say how long, I felt like I had enough focus and energy to get through the day. I worked a four-hour tutoring shift and didn’t need to immediately lay down for two hours. I was certain that I couldn’t take over the world, but that I could probably do a load of laundry and still have enough mental capacity to cook dinner. The way my life had been going, the idea of doing both those things in the same day was unbelievable.

Moving Forward After Diagnosis

I’d like to say that my life completely turned around right after that. But it didn’t. Internalizing an ADHD identity, and the impostor syndrome that can come with it is a process, just like any other healing. I still sometimes wonder if it was real, or if I’m just making excuses. But I’m working on letting myself accept it. I continue to seek out peer support; I share my experiences and listen to other people who have the same issues I do that I thought were only my own personal faults. And very slowly it sinks in. I’m not a failure. I don’t have to throw myself into a shame spiral every time I fall short, which was my previous reality. I have to take responsibility when I make mistakes, but instead of kicking myself in the face, I can give myself grace, and learn ways to try to do better next time, armed with strategies that actually work for my brain.

Now that I’ve got a diagnosis, I can work on reframing how I think about myself. My challenges are symptoms, not inherent personality deficiencies. My brain is wired differently, not broken, and as annoying as it often is, this is who I am and it’s okay. With the help of peers and my awesome therapist, I have begun the long process of rewriting my internal narrative to include much more self-compassion, and finding ways to work with my brain instead of against it.

If This Is You…

If any of this post resonated with you, I urge you to do some research. I am *not* a doctor, and I *cannot* offer any kind of diagnosis, or even specifically suggest one. But there are so many folks with ADHD who never got diagnosed, so if you see yourself in my story, it doesn’t do any harm to do some reading and to talk to some people. If you don’t know where to start, or are intimidated by the amount of information out there, there are some amazing pages for ADHD memes, where a lot of people have found themselves. Bonus, they’re also hilarious. I’m personally a fan of Jen Has ADHD, because it is a fabulous page and she is a fabulous human being who has built an amazing community of ADHDers.

Just remember that you deserve not to have to go through life on hard mode. Whether you have ADHD, or something else, you deserve to be loved and cared for, and to have your problems taken seriously. I hope you can find support; it’s a game-changer when you do. And know that I see you. I believe you. I’ve got you. If you have questions, or just want to talk, please reach out in the comments. I’ll answer what I can from a lived-experience perspective, and others might have information too. At the very least, the more people who comment, the more people who will realize they’re not alone.

Be Well, everyone.

Please don’t make me talk. And, ironically, a podcast.

Learning how to ask for help is a big part of life, and even moreso if you have a disability. We’re taught from a young age, hopefully, that it is a necessary thing, and we learn as we get older that it is, often, a survival skill.

But guys sometimes it’s really, really hard.

I don’t mean it’s hard in the sense that I am so beautiful and independent that I think I don’t need it. Or even that I have difficulty accepting that I need people’s help, though this is sometimes the case. What I mean is that there are a number of factors, like shyness, introversion, embarrassment, fear, that make asking for help difficult on almost a physical level. Now, I think this is one of the your milage may very moments, because maybe this isn’t a problem for some people, who are comfortable and extroverted. And that’s fabulous for them. But consider this a PSA from your shy/introverted/nervous blind people, okay?

I have a very vivid memory from my childhood that helps illustrate this. When I was younger, I was given orientation and mobility training. It’s training most blind people receive at some point, to teach them how to get around, how to use a cane, how to cross the street without dying (it’s a skill you generally need to be taught if you don’t have the functioning eyeballs). Part of my training, as I got older, was to select a location in an unfamiliar place, and learn how to get myself there. This involved some internet research (it was the early 2000s, for some reason I feel like google just wasn’t there yet), calling places, and learning how to approach strangers on the street, if all else failed, to ask for directions. I. hated. it! I think about walking up to those people, or, if no one was around, pretending my teacher was a stranger, and even 15 years later, I feel my stomach curling in on itself. As someone who is both shy of strangers, and an introvert, they might as well have been asking me to start singing and dancing. And it wasn’t because anything bad ever happened to me. People were always happy to help. But it was a painful process for me. I wasn’t embarrassed that I needed help, I just didn’t want to have to engage with strangers.

That was something of an extreme case. As a teenager, I hated talking to strangers so much that I used to offer to pay for my friends’ fast food if they’d be willing to order for us. I *really* hated talking to people I didn’t know. But even now, as I’ve gotten older and arguably more confident, there are still times where I don’t want to ask. I don’t know if you understand the feeling of being a woman in her 30s, asking someone to take you to the restroom? It’s not great. Yes, everybody goes, and yes, you’ve had to ask where it is in your own life. But I’m pretty sure you’ve never had to ask anyone to take you there, or needed to ask a stranger where the tampon dispenser is (the non-standard layout of public restrooms is a passionate rant of mine, for another time)

All that to say, sometimes it’s hard to ask, and for reasons you might not think of. Sometimes, it’s embarrassing. Sometimes, I’m having a bad day like everyone else, and I don’t want to talk to my good friends, much less a stranger, because I’m an introvert and I just don’t want to. Sometimes, I’m not in a good location, and I don’t feel safe seeking out a stranger. There are any number of reasons. And there is not necessarily anything you can do about this. So this post is not really a call to action. Sure, if someone looks lost, it’s okay to offer help, with an emphasis on *offer*. If they say they don’t want it, respect that; there are a number of reasons, like those listed above, and many others, that they just might not be able to cope with accepting your assistance in that moment. But on the flipside of that, try to take cues. If someone is looking closed off, or if they are doing everything possible to avoid metaphorical eye contact, just leave them to it, and wait. There is a difference between feeling unable to ask for help, and actually not wanting to. And if you hear about the latter, please don’t judge. I guess if there’s a call to action here, it’s that. If someone just didn’t have it in them to engage with a stranger, trust that they had a good reason, and let them do it.

We’re supposed to be well-trained in geting what we want and need. But sometimes things get in the way of that, and having someone who understands that can be really, really great. I know this post seems a little our of the norm for a teaching blog, but this has been something that’s been on my mind lately, especially after a conversation on how little we take things like introversion, shyness, etc, into account when talking about disability. Sometimes, the blindness is not the thing getting most in the way of doing stuff.

This, and many other things, are topics I will be covering in my… podcast. Yes, you heard that right. The introvert was on a podcast. I sat down with another grad student from our department and talked about blindness in teaching and academia, and about including folks with disabilities in the diversity conversation. I think it actually turned out pretty great. I’m not sure if I’ll post the actual thing here, as I still don’t know how much of my personal information I want on this blog. But I will post the main points, or a transcript, or something of that nature for sure.

Anyway, thank you for sitting through that strange and rambling post. I’m trying to be a better blogger here, which means sometimes writing long meandering things about topics that might only interest me. But as always, I appreciate you hanging around. Stay tuned for next time, when I will entirely flip sides on my personality, and talk about how a busy semester has caused me to go on the war path of accessibility, and how that’s something we should be pushing more. What can I say; I’m a walking, talking contradiction. Until then, thank you for reading. And please, if you see formatting errors here… just this once let them go. WordPress introduced a new post editor, and I hate it. But I’m learning how to work it out, and the next post will be prettier. Now, if you’ll excuse me, I have a dissertation chapter to go weep over.

Be well!.

Listen up: it’s time we talk about that inspiration porn.

There comes a time in every disability blogger’s life when the subject of inspiration must be addressed.  We get one too many “nice” comments about how inspiring we are for putting on socks or getting up out of bed and going to work, and that’s it.  Well ladies and gentlemen, this is that time.  This is gonna be a long post, so buckle up..  But it is really important, so if you have the time/inclination, please hang in there.  There may be cookies at the end (sorry there aren’t cookies at the end).

 

A disclaimer: I know you are not intending to be offensive. I know you are a nice person, and that you mean as well as well can be meant.  You think you are being encouraging, and that impulse is very sweet.  But you are still doing something wrong.  It’s classic “best intentions” territory.  But I am *not* trying to make you feel awful. Don’t go home and panic about all the people you’ve offended, and don’t be scared to compliment someone.  This post isn’t intended to scold you; it’s intended to explain some things, and hopefully change the way you think about the way you speak to people.

 

Disclaimer 2: I started this blog mad yesterday. I finished/edited it  all today when I was much calmer, but also not caffeinated. Words are hard. You have been warned.

 

 

Now, down to business.  I offer this scenario for your consideration:

 

I am working in the computer lab at school, helping a student check in a laptop.  He pauses, looks at me, and says “I’ve wanted to say this for a long time.”  I stare back, and wonder if I’m about to get hit on by a student for the first time.  He then follows this harbenger of doom with “I think what you do is really inspirational.”

 

I stare.  I say a very awkward “thank you,” because I am confused and annoyed, because I know where this is going, and I’m too midwestern to stop it.  He continues, clearly feeling very good about himself, “It’s just that most people in your position wouldn’t continue teaching.”  I make a lame comment about needing to make money somehow, and he leaves, and I slam a few drawers in frustration.

 

Some of you will be outraged on my behalf, and some of you will be very confused about why I’m so upset.  Didn’t he just give me a compliment?  Shouldn’t I be happy that he thinks I’m inspirational?  We live in a world that can make it hard for people with disabilities to succeed, and I’m doing a thing.  And it’s not that you’re entirely wrong; this world does make my life difficult sometimes, and it throws crap at me that someone with functioning eyeballs doesn’t have to deal with.  But really…we all have challenges that get in the way of living our lives, and people with disabilities are just muddling through like everybody else.  So, if you’re confused, let me do some translating here.  When he says “You’re so inspirational for teaching while blind” (paraphrased because I’m getting tired of typing out his comments), what I hear is:

 

“Because you can’t see, I expected that you’d be home somewhere having other people take care of you and/or would be in a job with much less responsibility.  And you’re at a teaching job making money, and that’s super surprising, good for you for rising above my non-existent expectations, which I am entitled to have because I know you super well wait not at all.”

 

Someone is now inevitably saying “but he didn’t mean that! Can’t you give him the benefit of the doubt/can’t you just take the compliment that’s intended?”  But here’s the thing.  As in any two-way communication, how I perceive the comment is just as important as how it was meant.  That’s…kind of a basic rule of talking to people.  I’m 100% sure he meant to be complimentary.  But he didn’t say I was good at my job, he didn’t say he respected my commitment, he didn’t say I was working hard.  He said that I was inspirational because I was doing the job I was paid to do…at all.  And I’m not even doing it well seriously guys I’m so behind on grading papers it’s ridiculous.  And he’s not the first–people tell me this often.  It’s never accompanied by praise for my skills or hard work; it stops at my eyeballs.

 

But that is the point I’m trying to make here.  You should always compliment people; compliments make the sun come up and the flowers bloom.  But think about what you’re complimenting them on, and how you’d take that compliment.  “Good job for showing up for work.”  “Good job for putting on clothes that match.”  “Good job for arriving somewhere at a semi-reasonable time.”  These are daily functions; they are…things people do.  You would never compliment a random person with no disability on this; you would just expect it.  So, though it probably sounds rude, I’m really not that grateful for compliments that basically congratulate me on getting out of bed.  And I’m getting tired of thanking you for them like I enjoy them (hence this post).

 

….Okay I should clarify, if you find me inspirational for getting out of bed because you know grad school is hard and adulting is super freaking difficult and you’re impressed that a time-challenged introvert with an aversion to cleaning gets up and goes to work every day with clean clothes on, that compliment I will accept the crap out of because life is just stupidly difficult when you’re a mess and it’s about time someone recognized my daily challenges.

 

All I, and most people, are asking for, is just that you think about what you are saying.  Someone I know once said “I’m proud of you for getting your PHD as a blind student.”  What I hear, again, is “I had no expectations for you so good job.”  And this wasn’t a stranger; this was someone I knew very, very well.  And the spirit behind the comment was lovingly intended.  But it hurt my feelings.  Is it so hard to stop at “I’m super proud of you for getting your PHD?”  That takes into account my skills and time, and makes me feel that my accomplishments are worth praise.

 

Like I said, if you’ve “inspirationed” all over someone before, don’t freak out.  You’re not the only one, and you won’t be the last one.  So I’m not asking you to feel guilty; I’m asking you to change.  Start valuing my perception of what you say as much as you value saying it.  Learn how to make someone feel proud, rather than ashamed, when you speak to them – because the rhetoric of “inspiration” does bring a great deal of shame with it.  Praise people on their accomplishments, not on what they’ve “overcome,” because in most instances, you know nothing about them.  And in the other ones you do know something about, 99% of the time, they want to hear they are doing a good job because they are…doing a good job, not in spite of something.  Everyone wants to feel valued, and everyone wants to feel proud of what they do and who they are.  So stop handing out the pity compliments and hollow praises, and start appreciating the people around you for the beautiful things they bring to your life just by being them.  It’s really not a hard thing to do, and it changes so much.

 

That was a long one; if you’ve stuck with this post all the way to the end, thank you.  And whoever you are, whatever you’ve said or not said, I still think you’re pretty awesome, because you let me have my say, and hopefully you’re at least thinking about it.

 

Now, if I don’t get some coffee in me, this Thursday is going to go very badly.  So I’m gonna do that, and you should too.  And who knows, maybe I’ll start blogging again, and not just raise up like a blogging zombie when something makes me mad.

 

Be well.

Ready, Set…

Second semester of my first year in the doctorate program has just gotten underway as of this morning, so it seemed as good a time as any to pop up out of the churning waves, gasping and flailing, to attempt a more consistent blogging schedule. This semester I am no longer an adjunct in the dark; instead I am a writing tutor in the dark, so in theory there should be more time without all that pesky grading. But the title of gradstudentinthedark still firmly remains as an implied subtitle, so I’m sure there will be plenty of madness to fill these pages.

I am reassured of this fact by the following information:
-My house is an absolute mess.
-My countertops are invisible under a pile of dirty dishes and tins of tea.
-You could knit a rather nice sweater out of the amount of cat hair in my house.
-I just figured out my schedule…today, for the semester that started…today.
-I still don’t actually know what I’m supposed to do for the other half of my job.
-It’s the first Monday and I’m already upset I have to go to work tomorrow.
-…this is only the first day of the semester.

See? Plenty of chaos. Some of it might not even be whining. But writing tutoring is also a brand new experience, one which will bring me into contact with the ranks of students beyond my freshman composition classes. And there is just nothing about that that promises any sort of awful normality.

And speaking of sleep in the worst segue ever, this is a thing I should do. Because if you can’t be well-rested for Monday, tell it to bugger off and shoot for Tuesday instead.

A happy belated new-year for anyone still hanging around in the void-that-is-the-blog. I hope to bring you tales of strange chaos and utter madness soon.

Be well!

Pet-Peeves of a Blind Person, or: I leave comments upon comments about the things you should think twice, or six times, before you do them to a blind person

A friend shared this on Facebook, and it hit everything so unbelievably spot-on that I had to post it here.  The last few posts, sparse as they’ve been, have largely focussed on that silly teaching thing.  So this seemed like an appropriate time to pay a little attention to the “in the dark” part of the blog.  They’re not separate, but it’s midnight or later and I don’t care to enter into that philosophical discussion right now.  And it’s my blog.  So there.

 

Now that I’m done being five years old, here’s the post.  These were written by someone who teaches blind and visually impaired children.  Milage may vary a little on all of these of course, but over all, pretty much every blind person I know has dealt with over half of these and found them really bloody obnoxious.  So read, learn, and don’t forget to laugh.  They are a funny writer, and it’s okay.  You have my permission to be amused.

 

I’ve put a * by the comments that are mine.  I am aware that the formatting for this has probably been shot to hell.  It’s been copied and plain-texted and everything else about five times, so just stick with it and try to enjoy it anyway.

 

Pet Peeves of the Blind and Visually Impaired

 

1. The Guessing Game. “Hey [insert name here]! Do you know who I am?” Oh, please don’t do this. I’ve seen adults do this with students (a lot) and frankly, it’s just rude. Don’t put that person in a position to be embarrassed just in case they don’t remember. Yes, they will recognize familiar voices, and you may know they recognize you, but please resist the temptation to prove it to others by quizzing them. Don’t you think you’d feel a little stressed if you thought you’d be tested about people every time you went out? Be considerate and identify yourself!

 

*I cannot express in words my levels of hatred for this game. You can be my own mother, and if you walk up behind me and make me guess who you are, I will instantly forget every single association we have ever had. An extra level of fun people like to add to this is changing their voice when they ask the question. There is a special place in hell for anyone who does this. It makes my INFP self want to wither and die, and I will forever hold a grudge against you and your descendants.

 

2. Being afraid of the “S” word. Someone can be talking to a blind or partially sighted person and say something like, “Let’s go see what’s for lunch.” Then they gasp and think, oh no, I shouldn’t have said “see”! Lighten up. Everyone uses “see” and “look” and “watch out!” Even the blind or visually impaired person.

 

*I will mock you, mercilessly. Usually I try to be understanding, and assume people have just not learned how to use their brains or common sense yet. But if you ask me to go listen to a movie, I will laugh in your face.

 

3. I’m blind, not deaf. HELLO, HOW ARE YOU?? Which goes along with one of my own pet peeves: “You teach blind kids? So you must know sign language?” Um, NO. I know braille. I wish I had a dime for every time someone asked me that – to include administrators during an interview. Sometimes they “get it”, but sometimes they don’t, but that’s okay because I’ve just deducted 5 IQ points from them. 🙂 And, for the record, I have taken sign language classes, but since I don’t have any deaf-blind students, I have long forgotten it. I wonder if teachers of the hearing impaired get asked if they know braille…

 

*This has, thankfully, actually never happened to me. I don’t think I would have a good response, except maybe to wiggle the white cane at them. People do try to give me the close-captioning box thingy at movie theaters though.

 

4. Blind people can hear everything. The flip side of #3, people assume the visually impaired have so much better hearing than the rest of us. No, but they do rely on it much more, so they are probably listening and paying attention better. Not necessarily paying attention to the teacher, though. They also don’t have visual “distractors” so to speak, so they can focus more on what they hear. Unless they don’t want to hear it, of course. They are human, after all.

 

*I tell my students I am Dare-Devil, and leave it at that. I find it works better to instill respect through fear if they’re wondering if I can hear their inner thoughts, and don’t care to disabuse them of the notion that I can hear the clicking of their touch-screens.

 

5. “I don’t really believe he’s blind, even with that white cane. I’m not moving from this side of the hallway.” That attitude will leave you sprawled out on the floor when the person barrels into you. Here’s a good rule: Don’t play chicken with a blind person. You will always lose. Instead, get out of the way, or at least make yourself known by saying something or making a noise.

 

*All it takes is a cough or a shift or a rustle. I am an introvert; trust me, I understand the deer-in-the-headlights thing that happens when anyone is approaching you down a hall at speed. I am guilty of just stopping and staring in silent horror as someone comes crashing down upon me. But please, if you can at least make some sort of alerting squeak, you will save us both a lot of embarrassment and lengthy apologies.

 

6. Holding out your hand to shake theirs without touching their hand. If that person cannot see your hand, how is he/she supposed to know where your hand is? Answer: They will often extend their hand in anticipation, but if not, tell them you would like to shake their hand and then reach out and take their hand. Same thing goes for handing them something. You would be amazed how many times this happens. “Here’s your homework” and then you hold it out in space. Or, even better, don’t say anything at all and hold it out. Again, exactly how is he/she going to know where it is? Grope about for it? Sometimes groping is okay, like for finding a dropped item. But when handing things to the visually impaired, please touch their hand with it so they know where it is.

 

*Happens to me most often with credit cards at restaurants. People at counters will just hold my card in the void. This would be fine, except I am also holding my hand out to receive the card. This sort of stand-off has lasted for far longer than it should ever be allowed to. I have a wonderful friend who will give them about 30 seconds before she will just yank the card out of their hand and put it in mine. Translation: you are an idiot and I am going to help you out while I wonder if you can feed yourself.
…I very specifically try to avoid 99% of opportunities for my students to hand me things. We are all happier this way.

 

7. Low expectations. This includes: the “pity” person (Oh, you poor blind child. You must have a terrible life.), the “know-it-all” (Dr. so-and-so can work miracles. I know because my grandmother/nephew/dog has 20-20 now.), “Mr. Helper” (Let me do that, I know it’s too hard for you.), the “excuse-maker” (I don’t want him/her to learn how to make a [insert food here] because they might cut/burn/make a mess. You can’t go on that field trip because there might be a terrorist attack and I would worry.), the “denial/embarrassed person” (Don’t use your cane at the store so people won’t know you’re blind.), and unfortunately, the list goes on and on. Low expectation is probably the worst thing one person can do to another, regardless of abilities. If you aim for low performance, that’s likely what you’ll get. Don’t be an enabler. Being too over-protective will dramatically hinder their progress toward independence and living a happy, social, productive life. Step back. Allow them to fail, get a minor injury, and make their own mistakes. That’s how we all learn. Don’t forbid them these opportunities.

 

*…there are too many instances of this for me to count or describe. Just never do this; you are actually smothering the life out of someone. This has, however, translated into my teaching, as I have actually had students write “for a blind person, she is a great teacher,” or “I know she is blind, and I admire her for that, but…” in their evaluations. It is patronizing as hell, and usually has nothing to do with the “but”. They just have a built-in need to give me cudos or something. Either that, or they’re worried that some organization will throw them in prison for being mean to me.

 

8. Would you like to feel my face? Whoa. Do you ask sighted people if they’d like to feel your face? First of all, a blind person is not going to get a lot of information from feeling a face, other than maybe the shape of your nose. There are times when it is appropriate, such as when learning parts of the body. But if you are not immediate family, allowing a blind or partially sighted person to “feel” you is very inappropriate. And there are some who will attempt to do just that because they know many people aren’t sure about that protocol. Their hand needs to stay in a handshake, and not move up your arm, and certainly nowhere else! If you wouldn’t let a sighted person feel you, don’t let a blind one. I’ve answered this question a lot from sighted people who have felt awkward allowing this to happen. Well, they feel awkward for a reason! It’s not socially acceptable! Feeling your hair, or the lack of it, can be appropriate depending on the circumstances. I’ve also had this question from a parent: How will my son know what a particular girl looks like? Answer: His friends will tell him!!! Oh yes, they will. 😉

 

*…never ask me this. Seriously, never. I will explode from embarrassment. Honestly, unless someone is sculpting a marble bust to preserve your image for the sake of posterity, I can’t really think of a situation in which this question *isn’t* awkward. I’m sure there are exceptions, but unless you are very very very sure, please assume, for everyone involved, that your situation is not one of those exceptions. And if you don’t ask me to touch your face, I in turn promise that I will not grope your arm. This reverse is also seriously weird, and if anyone, sighted or blind, starts groping you without permission, please please gently disabuse them of the notion that that is okay very quickly.

 

9. Rudeness. It’s usually just ignorance, but don’t assume that any blind or visually impaired person automatically needs help. Grabbing the person’s arm and pulling them along is wrong on several levels. We know you’re probably just trying to be nice, but don’t. First, always ask the person if they would like some assistance. Then, use the sighted guide technique correctly. Offer your arm and let them hold it, usually right above the elbow. Also, if there are several others with the person, speak directly to him/her, not through an “interpreter”, as if the person is not there. Say his name, so he knows you are talking to him.

 

*I feel like my mockery of the people in the faculty lounge pretty much sums this up. Most of the time, I know you have the best of intentions. But before you do these things, do what the little children are taught to do, and consider if you would want someone to do it to you. And not an imagined blind and “feeble” version of you, but the you that is standing there debating whether you should man-handle or rudely ignore a stranger to ask their “friend”.

 

10. Pure meanness. Placing obstacles in the blind or visually impaired person’s path, throwing things at them, rearranging furniture, moving or taking their belongings, calling them names, taking them to the wrong place and leaving them. Yes, it is mean – and it happens all too often. There will always be Sith among us, but educating ourselves and our children about disabilities may help reduce the bias, discrimination and ignorance.

 

*This happens less now that the hell of middle school is over, but, surprisingly, sometimes it still does happen. Usually it’s semi-close friends, who know that I love making blind jokes and who think it’s funny to join in the game. And sometimes it is. My best friend’s family will occasionally move their kitchen stool into my path, because I am magnetically drawn to the stupid thing and will trip over it no matter where it is. So eventually they just started moving it around to screw with me. But instances of this being funny are rare—this one is only funny because there is a decade plus of history behind it. But normally… I do not like to trip over crap or lose my stuff. Here is a good test: if the result of your “joke” will end with the person making an ass of themselves, or will injure or embarrass them, it’s probably a bad idea. I love making blind jokes, and I don’t mind other people doing it too. But if the result of the joke is that I look like a stereotypical “blind” person embodying all the worst stereotypes, or have made a fool of myself, I’m not going to find it funny. Would falling over a coffee table be fun for you? No? Then assume I’m not going to love it either.

 

Hopefully this has been enlightening. The long and short of it is: don’t be dumb. Treat people like people. You don’t need to be scared of us, but do please try to use your common sense. I have failed to do this in plenty of situations and regretted it for years and years and years (remember INFP?), so I feel your pain. But save everybody some anxiety dreams and just try to chill out and use your brain. The whole world will love you for it.

 

Here is a link to this lovely teacher’s page, where the actual genius was originally posted. I thank them for putting this up so I can make excessive commentary on things that are already wonderfully said.

http://mycheesegrits.hubpages.com/hub/Pet-Peeves-of-the-Blind-and-Visually-Impaired

Poor, poor neglected blog…

I was doing so well with keeping up posting here, and then I just…failed.  This fall hit me hard.  I couldn’t really tell you why.  But my energy levels have been at less than 0.  But I’m back in action now, so let’s hope it holds.

 

Translation: I’m submitting PHD applications, prepping my students for their final research papers, and trying to prepare for the holidays.  So, go go gadget procrastination.

 

I won’t do a recap of the entire semester here, because frankly, none of you really care that much.  I don’t, either.  But let’s say it’s been a little rough.  I can’t tell if it’s my lack of enthusiasm, or if I just have the biggest collection of bums ever, but we are just not making headway.  They are not bad kids, but they are lazy, and ballsy about being lazy.  I am also lazy, and we are just having a big old collaborative laze-fest that is not getting things done.

 

Some of my favorite examples of our issues:

“I didn’t get the essay. So I didn’t do it.” (We had been working on it in class for 20 minutes.)

“Can I get some help? Also how do I do citations.” (the evening *after* we turned the paper in.)

“We have to read the whole thing?” (I gave them class time to read an article they were supposed to read for homework.)

 

So I think it might be a combo.  Grad apps season also means that my brain is not totally on teaching.  So I’m working on being better–if I have more pep, maybe they will too.  I’m also hoping stuffing myself with potatoes and pie for the next three days will put a bit of zip back in me.  Or it will send me into a food coma.  I will take either.

 

And, finally, since I know you were all dying to hear about it…

 

THE TEACHERS LOUNGE SAGA CONTINUES!

 

So, either my colleagues are paranoid, or actual hot magma comes out of the coffee machine.

 

Me: *creeps in, trying not to interrupt jabbering ladies*.

Jabbering ladies: blah blah blah, What Not to Wear, so-and-so’s grandpa…*slow fade to silence*.

Me: *continues to be awkward. Grabs cup for coffee.*

Jabbering ladies: *whisper whisper, mumble something about coffee*.

Single jabbering lady: *comes over* it’s hot. Do you need help? I don’t want you to burn yourself. It’s REALLY hot.

Me: I’m fine.  It’s…I’m…I’ve got it.

Lady: *looks dubious*.

Me: *collects coffee.  Waves like manic idiot. Flees.*

 

And they keep going silent and watching me when I go in there.  It is coffee, not lava. Calm down, people.  It’s getting to the point where I don’t even go in there if I can hear people–the worried staring is just uncomfortable for everybody.

 

So, I hope that amused you, or at least told you my sense of humor has not improved.  I’m going to try going back to around once a week.  If that doesn’t happen…someone poke me.  I either got lazy, or I’m taking a cross-country hike to go throw eggs at the ETS building.

 

…or I crawled under my bed and am refusing to come out.  Anything is possible.

My Victory’s Complete!

I finally have a contract!  And once I get off this blog, I’m actually going to go sign it!

 

The writing prompt for today was “pick the third line from the last song you heard and make it your post title, then write.”  I usually reserve that kind of posting for when I have important non-bloggy things to do that I’m procrastinating on, but upon reflection, the title seemed appropriate.  Thanks, Joss.

It was Just the Wind

I went to campus today to run a few beginning-of-semester errands, including “I wonder where my classroom is” and “let’s see if anybody knows why I don’t have a real contract yet.”  In the process, I decided to stop down to find out where my mailbox was, because I…never actually used it last year, and I needed to have some desk copies sent to school.

 

Turns out…I don’t have one.  The lady asked me if it was going to be my first semester.  I said no, and she just looked puzzled and said she’d get her boss to Email me (which he didn’t do, but my hopes weren’t high on that front).  Luckily, I found out I can ship desk copies to the department office, so all’s well on that score.

 

Then, upon arriving home, I had a note from our accessibility services, notifying me of some things relating to my class list.  Immediately following that Email, I had a “welcome to the university, here’s what you need to know about the accessibility office.”

 

…Was I invisible last year?  Did I just end up as a figment of my supervisor’s imagination?  I know there are probably reasonable explanations for why I’m getting some of this stuff now, but it kind of makes me feel like I just hallucinated the last two semesters, and really this is my first time teaching.  I’d heard adjuncts were forgettable to some people, but I really must have done a spectacular job of being antisocial.  There seems to be no sign that I actually existed in 2012.

 

On the bright side, I did find the infamous faculty lounge!  The one where, when I asked where it was, I got the “…I have no idea” from two or three different people.  This, and the strange look I got from someone going in there this afternoon, kind of leads me to believe adjuncts aren’t really “welcome” there, but it is a magical land with coffee and hot water for tea and a microwave and a toaster and dammit I am not giving that up.

 

…I did not have the guts to take a brownie off the table. I want to challenge boundaries here, not stomp them into little pieces.  The social order must be maintained.

 

One week and counting…